"We had made tshirts for my sons heart walk. Our son Brandon (18 months) was born with rare heart defect called HLHS. He under went two open heart surgeries before the age of 1. Right after his firs..."
"I lost my youngest daughter to a rare and complex congenital heart defect last summer. Before ther diagnosis I knew little to nothing about CHDs. Most people I have talked with don't either. I had ..."