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International SCN8A Awareness Day 2020

Organized by The Cute Syndrome Foundation
Front large extended
International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - front
International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - back
International SCN8A Awareness Day 2020 shirt design - zoomed
International SCN8A Awareness Day 2020 shirt design - zoomed
International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - front
International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - back
International SCN8A Awareness Day 2020 shirt design - zoomed
International SCN8A Awareness Day 2020 shirt design - zoomed
International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - front
International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - back
International SCN8A Awareness Day 2020 shirt design - zoomed
International SCN8A Awareness Day 2020 shirt design - zoomed
International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - front
International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - back
International SCN8A Awareness Day 2020 shirt design - zoomed
International SCN8A Awareness Day 2020 shirt design - zoomed
International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - front
International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - back
International SCN8A Awareness Day 2020 shirt design - zoomed
International SCN8A Awareness Day 2020 shirt design - zoomed
Sport-Tek Baseball Raglan

#StrongerTogether

verified-charity
All funds raised will go directly to The Cute Syndrome Foundation, Inc. .
47 items sold
$420 raised
50 goal
Thanks to our supporters!
$30
Sport-Tek Baseball Raglan
Unisex - White / Purple
  • International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - small
  • International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - small
  • International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - small
  • International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - small
  • International SCN8A Awareness Day 2020 Fundraiser - unisex shirt design - small
Organized by The Cute Syndrome Foundation

About this campaign

International SCN8A Awareness Day is upon us. You have read our stories and joined us on this crazy journey these last three years.

We have shown you how we KEEP MOVING FORWARD and you have learned we will never give up this fight because WE CHOOSE HOPE. This drive we have comes from the connections we have created within and outside our community. In the days surrounding February 9th, International SCN8A Awareness Day, you will learn one thing about the people in this fight...we are #StrongerTogether!

Your purchase of an SCN8A Awareness Day shirt will not only help support the work we do in the SCN8A community, but you can also help us spread awareness around the world by wearing your shirts on February 9th. Share a photo on social media with the tags: #strongertogether #scn8astrong #scn8aawareness

Alone we fall. Together...we rise.

Our Mission: The Cute Syndrome Foundation raises awareness of SCN8A mutations, funds the dedicated and talented scientists researching SCN8A, and supports the families around the world who are affected by this disorder. The Cute Syndrome Foundation also has a history of funding PCDH19 research.

Our Vision: The Cute Syndrome Foundation is the starting point for support for new families to reach as they receive a diagnosis. We help clinicians standardize treatment for individuals with SCN8A. We work to expand scientific knowledge of rare genetic mutations associated with pediatric epilepsy and remain the mainstay foundation to increase public knowledge of SCN8A mutations as well as rare genetic mutations and pediatric epilepsies. F85447FF-1F20-4EED-982B-484C878024BFjpeg

Supporters

Lynn Jenkins 1 item

In memory of DustinEid! My grandson. An SCN8A angel in heaven.

Carly Morano 1 item
Elli Faehnrich 1 item

My granddaughter!!!

Tammy A Kooistra 5 items

Liam Kooistra

Natasha McDonald 2 items

I am supporting my sweet nephew and all his friends out there in the world!

Karen Varner 3 items

In honor of my daughter Lily Varner

Lisa OHara 4 items
Roland Waegner 2 items

For Bruno, Will and Shay, and all the kids and families in the struggle.

Gail Guillemette 1 item

For our lil Connor!!!

Dianely Cabrera 1 item

For our Max and his SCN8A brothers and sisters!

Comments

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