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International SCN8A Awareness Day 2020
Sport-Tek Baseball Raglan
- Sizes YXS - XXXXL
- View Sizing Guide
About this campaign
International SCN8A Awareness Day is upon us. You have read our stories and joined us on this crazy journey these last three years.
We have shown you how we KEEP MOVING FORWARD and you have learned we will never give up this fight because WE CHOOSE HOPE. This drive we have comes from the connections we have created within and outside our community. In the days surrounding February 9th, International SCN8A Awareness Day, you will learn one thing about the people in this fight...we are #StrongerTogether!
Your purchase of an SCN8A Awareness Day shirt will not only help support the work we do in the SCN8A community, but you can also help us spread awareness around the world by wearing your shirts on February 9th. Share a photo on social media with the tags: #strongertogether #scn8astrong #scn8aawareness
Alone we fall. Together...we rise.
Our Mission: The Cute Syndrome Foundation raises awareness of SCN8A mutations, funds the dedicated and talented scientists researching SCN8A, and supports the families around the world who are affected by this disorder. The Cute Syndrome Foundation also has a history of funding PCDH19 research.
Our Vision: The Cute Syndrome Foundation is the starting point for support for new families to reach as they receive a diagnosis. We help clinicians standardize treatment for individuals with SCN8A. We work to expand scientific knowledge of rare genetic mutations associated with pediatric epilepsy and remain the mainstay foundation to increase public knowledge of SCN8A mutations as well as rare genetic mutations and pediatric epilepsies.
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Share Why You Support "International SCN8A Awareness Day 2020"
Supporters
I am support my daughter McKenzie Uliasz!
Supporting research is the only way we can hope for a smiling future for our little warriors
Proud to show our support of this wonderful group. It is a constant source of support, information, and love. After diagnosis, one of the very first things our neurologist did was to show us this group on Facebook. So grateful she did.
My son has SCN8A
Parce que mon cousin, une des personnes les plus importantes à mes yeux avaient cette mutation et je souhaite du plus profond de mon cœur qu’une cure soit trouvée. Repose en paix Augustin (mon p’tit Gus d’amour ❤️ )
I had the honor of attending the Baltimore conference with my daughter Mackenzie Addy's mommy.Every person I met was special and 100% committed.
Our granddaughter, Sadie has scn8a
My son Jacob is a SCN8A hero.
Granddaughter diagnosed with SCN8A mutation epilepsy