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Avleigh's Journey
Gildan 50/50 T-shirt
- Sizes YS - XXXXXL
- View Sizing Guide
About this campaign
Avleigh was born with a genetic disorder called Pontocerebellar Hypoplasia Type 2D. Type 2D is a very rare form of PCH that has significantly limited her physical and communicative abilities. She is now 5 years old, attending public school and is content with life more now than ever. She enjoys watching other children play, Mickey Mouse, bubbles, music and being outdoors. She is under very close medical care to mitigate and control her complex medical needs. As Avleigh's parents, our goal is to keep her comfortable and continue to live a happy life.
We are raising funds to assist with her medical needs that are not covered by her insurance. Our current investment is a new wheelchair accessible van, as her current one is not reliable. 70% of funds raised will be applied to the conversion to make the van accessible and 30% will be saved for “Research and Development”. With her rare disease, we are continually working with different doctors to find anything that can help to improve her quality of life. These items are considered to be research which is why they are not covered by insurance. One thing that may be an option is stem cell treatments. This has the possibility to override her bad stem cells. Another item is a communication device, called an eye gazer. This would allow her to train to use a screen to communicate with her eyes. If either of these items are something that we would decide to pursue, the Research and Development funds raised would assist with that.
Please note: Kids sizes are available in the Gildan Ultra Cotton Purple T-shirt!
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Supporters
Granddaughter of best friend. Wonderful little girl and family.
She is the granddaughter of my dad’s very good friend. This is a wonderful family we deserves so much. Prayers to this sweet girl and family.
This is the granddaughter of a friend. She is such a beautiful child and deserves everything in life that can help her learn and grow and to help make it easier on her parents.