Bailynn Tough Men's Tshirts

Bailynn suffers from tuberous sclerosis. Unlike many others with this disorder, she has every marker that is used to diagnose this rare and deadly disorder. Bailynn's tubers are currently in her Brain, Heart, Kidneys, eye, on her skin and recently discovered in her liver. The final organ to attack will be her lungs.

Bailynn Suffers from epilepsy and at 15 months of age had the left-side of her brain removed to help relieve her from constant seizing. Bailynn does still have seizures and has had a Vagus Nerve Stimulator implanted to help with the control of seizures. There is nothing more heart wrenching than watching your child seize.

Her current fight is against the tubers that continually form and grown in her kidneys and liver. She has a forever battle against a disorder that has no cure and has not had break throughs medically for treatments. We continue to keep a positive outlook though the days that she suffers in pain are long and hard.

Despite all of Bailynn’s continuing obstacles she continues to be a strong and happy little girl. Though she is wheelchair bound and doesn’t speak, she tells the World a marvelous story of Hope and Courage.


Visit my blog at www.my5girls.com for read more about Bailynn and our family's journey with Tuberous Sclerosis!