Hope for Addy
Buy a shirt to Help Addy fight for her cure! Batten Disease Awareness
Orders are delivered about 2 weeks after the campaign closes.
About this campaign
After 3 years of many doctor appointments and many tests, in August Melissa (Munch) Becker's daughter, Addy Boggs, was diagnosed with Batten Disease CLN3. Batten Disease is a very rare genetic disease, many symptoms are associated with this, the first of them being vision loss, which Addy is already experiencing. Currently there is no cure for Batten Disease. To find out more details on this terrible, heart breaking diagnosis, go to BDSRA.org