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Family Forum in Washington DC Fundraiser

Organized by Hope For Hypothalamic Hamartomas
Po14738451 front2
Family Forum in Washington DC Fundraiser Fundraiser - unisex shirt design - front
Family Forum in Washington DC Fundraiser Fundraiser - unisex shirt design - back
Family Forum in Washington DC Fundraiser shirt design - zoomed
Family Forum in Washington DC Fundraiser shirt design - zoomed
Family Forum in Washington DC Fundraiser Fundraiser - unisex shirt design - front
Family Forum in Washington DC Fundraiser Fundraiser - unisex shirt design - back
Family Forum in Washington DC Fundraiser Fundraiser - unisex shirt design - front
Family Forum in Washington DC Fundraiser Fundraiser - unisex shirt design - back
Family Forum in Washington DC Fundraiser Fundraiser - unisex shirt design - front
Family Forum in Washington DC Fundraiser Fundraiser - unisex shirt design - back
Gildan Ultra Cotton T-shirt

Please help raise funds for the Family Forum in DC.

verified-charity
All funds raised will go directly to HOPE FOR HYPOTHALAMIC HAMARTOMAS .
25 items sold
$240 raised
100 goal
Thanks to our supporters!
$20
Gildan Ultra Cotton T-shirt
Unisex - Purple T-Shirt
  • Family Forum in Washington DC Fundraiser Fundraiser - unisex shirt design - small
  • Family Forum in Washington DC Fundraiser Fundraiser - unisex shirt design - small
  • Family Forum in Washington DC Fundraiser Fundraiser - unisex shirt design - small
  • Family Forum in Washington DC Fundraiser Fundraiser - unisex shirt design - small
Organized by Hope For Hypothalamic Hamartomas

About this campaign

The Family Forum will support and educate families with HH. The HH journey call be a lonely and frustrating one. Being able to socialize and learn with other families on the same journey can be empowering.

http://www.hopeforhh.org/blog/whats-new-hh-dc-family-forum/

Hope for Hypothalamic Hamartomas (Hope for HH) is a volunteer-based nonprofit organization founded by parents of children with hypothalamic hamartomas (HH). Our goal is to create a single, credible source for information about the diagnosis, treatment, and support of individuals with HH. Every family touched by this rare disorder has a unique and often heart-breaking story of how they attained a correct diagnosis. Obtaining a correct diagnosis can take months and even years and often involves incorrect diagnoses. Once a diagnosis is confirmed, many families struggle with choosing an appropriate course of treatment, if one is even available. Regardless of treatment, managing the daily lives of HH patients and dealing with the long term and frequently devastating effects of HH requires ongoing information and support.

Supporters

Erica Webster 3 items
Diane West 1 item + $50

My grandson, Dean, was diagnosed with HH and has been through surgery with Dr. Curry of Texas Children's Hospital. He appears to be seizure free since surgery, but HH is still something that is constantly on our minds.

Sharen Webster 1 item

In honor of granddaughter Grace Webster.

Lisa Soeby 3 items

I love wearing my Hope for HH t-shirts! They are great conversation starters. It is all about education and awareness!

Anonymous 5 items
Erica Webster 2 items
Kristi Dunn 1 item + $25

Because of awesome nephew, C.J. :)

Rose Noesen 1 item + $10

Know Kate Arneson and her family. Kate is a sweet little girl.

Judy Conway 1 item + $10

In honor of my great-nephew, Mattias Peterson

Susan Davis 3 items + $10

Son has HH.

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