Emery's Army: Sturge-Weber Awareness

Emery Grace was born on August 4, 2015. Her parents felt on top of the world as they welcomed the arrival of their new baby girl. After a few hours, they noticed there was something different about their sweetheart. She was born with a large Port Wine Stain, which is a birthmark, on the right side of her face. At the time, her parents did not know the challenges this would bring to Emery's life. Emery has always been a smiley and happy baby. Everything seemed ormal, and i appeare she would live a completely normal life. 

On January 3, 2016, Emery was life flighted to Primary Children's Hospital after having multiple prolonged seizures. She was diagnosed with Sturge-Weber syndrome, a rare condition that is associated with brain atrophy, seizures, strokes, glaucoma, developmental delays and a long list of other lifelong challenges.

Emery's path will be different. There are no sure answers for her future right now, but her parents hope that by providing her with optimal care, answers will be found in the coming months and years. Emery is a happy, sweet irl, who is oved by any. She will have a wonderful life. Join her fight. Join Emery's Army.