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CLOVES Syndrome - CLOVES Awareness Day
Organized by CLOVES Syndrome Community
Next Level Jersey T-shirt
- Sizes YXS - XXXXL
- View Sizing Guide
More about the CLOVES Syndrome Community
CLOVES Syndrome stands for Congenital, Lipomatous, Overgrowth, Vascular Malformations, Epidermal Nevi and Spinal/Skeletal Anomalies and/or Scoliosis and was identified simultaneously and independently by Saap et al. and Alomari. CLOVES Syndrome has been diagnosed in about two hundred people worldwide.
CLOVES Syndrome is a non-hereditary disease that affects multiple systems and parts of the body. For many people, living with CLOVES Syndrome can lead to pain, challenges with mobility, overgrowth, neurological deficits and a host of other problems. There is no cure for CLOVES Syndrome and there are limited treatment options.
The vision of CLOVES Syndrome Community is an improved quality of life for people living with this rare disease. Learn more about our mission and goals on our website at www.clovessyndrome.org
We love someone with CLOVES Syndrome. If you are here, we bet you do too. Please help us to support CLOVES Syndrome Community and those we love with this ultra rare disease.
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Supporters
Our staff will be sporting these shirts to raise awareness for CLOVES Syndrome in honor of Chis and Karen's beautiful baby girl.
Adalynn MacKinnel
My niece was recently diagnosed
My son has CLOVES.
My son has Cloves
So much love and support for my sweet Haylee & everyone with CLOVES