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Founded in 2009, The Many Faces of Moebius Syndrome is the largest all volunteer Moebius Syndrome organization in the world. Prior to the popularity of Social Media, our founder Tim Smith, Gavin Fouche, Donnie Downs, and a few others pioneered the internet and brought the online global Moebius Syndrome community together one family at a time.

In 2009 we started collecting personal stories from the global Moebius Syndrome community and now house the worlds largest selection.

On January 24, 2011, Many Faces of Moebius began Moebius Syndrome Awareness Day which has grown to become a global day of celebration held on January 24th of each year. History of Moebius Syndrome Awareness Day.

The mission of the Many Faces of Moebius Syndrome is to create a better tomorrow for ourselves and our children living with Moebius Syndrome through education and awareness. History of the Many Faces of Moebius Syndrome.

We hope you’ll explore our websites and learn all about our amazing global community. Please feel free to email us at info@teammoebius.org