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NOT TODAY DRAVET!

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Organized by Dravet Syndrome Foundation
Po44892793 front
NOT TODAY DRAVET! Fundraiser - unisex shirt design - front
NOT TODAY DRAVET! Fundraiser - unisex shirt design - back
NOT TODAY DRAVET! shirt design - zoomed
NOT TODAY DRAVET! shirt design - zoomed
NOT TODAY DRAVET! Fundraiser - unisex shirt design - front
NOT TODAY DRAVET! Fundraiser - unisex shirt design - back
NOT TODAY DRAVET! Fundraiser - unisex shirt design - front
NOT TODAY DRAVET! Fundraiser - unisex shirt design - back
NOT TODAY DRAVET! Fundraiser - unisex shirt design - front
NOT TODAY DRAVET! Fundraiser - unisex shirt design - back
NOT TODAY DRAVET! Fundraiser - unisex shirt design - front
NOT TODAY DRAVET! Fundraiser - unisex shirt design - back
NOT TODAY DRAVET! Fundraiser - unisex shirt design - front
NOT TODAY DRAVET! Fundraiser - unisex shirt design - back
Gildan Ultra Cotton T-shirt

Show your support with our new "Not Today Dravet" apparel!

verified-charity
All funds raised will go directly to Dravet Syndrome Foundation, Inc.
$1,570 raised
133 items sold of
150 goal
Thanks to our supporters!
$20
Gildan Ultra Cotton T-shirt, Unisex - Navy
Gildan Ultra Cotton T-shirt
Unisex - Navy
  • NOT TODAY DRAVET! Fundraiser - unisex shirt design - small
  • NOT TODAY DRAVET! Fundraiser - unisex shirt design - small
  • NOT TODAY DRAVET! Fundraiser - unisex shirt design - small
  • NOT TODAY DRAVET! Fundraiser - unisex shirt design - small
  • NOT TODAY DRAVET! Fundraiser - unisex shirt design - small
  • NOT TODAY DRAVET! Fundraiser - unisex shirt design - small
Picture?width=80&height=80
Organized by Dravet Syndrome Foundation

About this campaign

Support our #NotTodayDravet campaign and receive your apparel to wear during Epilepsy Awareness Month, November 2020! We will be looking for photos of our community members spreading awareness and showing their support for our mission to find a cure for this devastating illness. All proceeds benefit the Dravet Syndrome Foundation.

Dravet syndrome is a rare, catastrophic, lifelong form of epilepsy that begins in the first year of life with frequent and/or prolonged seizures.

Dravet Syndrome Foundation is a 501(c)(3) non-profit working to aggressively raise funds to research better treatment options for those living with Dravet syndrome and related intractable epilepsies and rare diseases. Since its inception in 2009, DSF has raised over $4.6 million for research and awarded over $176k in Patient Assistance Grants.

Previously known as Severe Myoclonic Epilepsy of Infancy (SMEI), it affects 1:15,700 individuals, 80% of whom have a mutation in their SCN1A gene [1]. While seizures persist, other comorbidities such as developmental delay and abnormal EEGs are often not evident until the second or third year of life. Common issues associated with Dravet syndrome include: - prolonged seizures - frequent seizures - behavioral and developmental delays - movement and balance issues - orthopedic conditions - delayed language and speech issues - growth and nutrition issues - sleeping difficulties - chronic infections - sensory integration disorders - disruptions of the autonomic nervous system (which regulates things such as body temperature and sweating)

Current treatment options are limited, and the constant care required for someone suffering from Dravet syndrome can severely impact the patient’s and the family’s quality of life. Patients with Dravet syndrome face a 15-20% mortality rate due to SUDEP (Sudden Unexpected Death in Epilepsy), prolonged seizures, seizure-related accidents such as drowning, and infections. Research for a cure offers patients and families hope for a better quality of life for their loved ones.

Learn more at www.dravetfoundation.org

Supporters

Cesar Cruz 1 item + $10

Because f dravet

Vanesa 2 items

My 4 year old is a Dravet warrior!

Brittany DesJardins 2 items
Sara Morin 4 items

For our Super Sawyer!

Melinda Tyra 1 item

Dravet family member

Rachel Scott 1 item

For the love of all the Dravet Warriors

Erin Reoyo 1 item

For my 6 year old son with Dravet Syndrome

Emily Cheng 2 items

My daughter has dravet, she is 3, and I’m hoping for a cure.

Jenny Gallo 3 items
Michelle E Fiola-reidy 3 items

My daughter, age 18, has Dravet Syndrome. My ability to fundraise has been limited so this is my way of helping.

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