Sloth Running Team: Let's Nap Instead!

About this campaign

I am a single mother of a beautiful, bright three year old named Willa. Since my disease worsens with activity and improves with rest, I now require assistance with daily tasks of living to avoid respiratory crisis. Willa fights hard to be brave for me while I fight hard to get better for her. This fundraiser is to help cover an upcoming visit with my Myasthenia Gravis Specialist as well as upcoming costs for a desperately needed surgery for my disease.

WHAT DO I NEED HELP WITH?
Everything from errands to getting the mail, to laundry and cleaning, rides and childcare, groceries, hygiene, dishes and meals. I have had to rely on friends and family for this assistance, and have largely paid out of pocket for regular help. Our life is completely dependent on the help of others.

This is a cost which I cannot afford and for which I am not able to get other forms of aid from the state. I have accumulated a substantial amount of debt trying to survive and cannot keep up. My hope is that these costs will diminish once I receive the right treatment and can do more myself. This has been a challenge due to my other health conditions, limited healthcare where I live, and health insurance barriers.

Because my disease is considered very rare and I live with multiple other complex conditions, I have to travel out of state for medical care from a board certified Neuromuscular Disease specialist. I have had and will continue to have a great deal of out of pocket costs to manage my illness. Costs I can no longer afford on my own. I hope to have a surgery called Thymectomy performed this year, which is the only known treatment giving patients with Myasthenia Gravis a chance at remission. This surgery will be supervised by my out of state specialist and a huge challenge to afford. Due to the severity of my disability from MG and my poor response to the limited treatments compatible with my other health conditions, Thymectomy offers me a great deal of hope for improvement and recovery.

Would you like to help support disabled single mom Whitney and her daughter Willa fight a difficult diagnosis of Myasthenia Gravis that has profoundly impacted both of their lives? Please check out other ways to help here: https://www.unknownetiology.com/support

Thank you so much!
xo,
Whitney & Willa