Standing with G

G (Gina) is a 16 year old junior in high school. Last July, she was diagnosed with Dysautonomia. After 6 years and 8 doctors we finally had a diagnosis and were relieved to finally know for sure that she did not have a heart condition! Unfortunately, soon after that diagnosis her symptoms started to increase significantly. G struggles with many autonomic functions - heart rate, blood pressure, breathing, body temperature ...the list goes on. ANS (Autonomic Nervous System) controls all of these things and more... basically it controls everything you can't. Everyone is different. She has developed POTS (Postural Orthostatic Tachycardia Syndrome) which is a type of Dysautonmia. She cannot tolerate standing a long time and when she stands up from the seated position, can easily pass out. Her symptoms also include: chest pains, shortness of breath, tachycardia, headache, migraines, visual disturbances, anxiety, feeling faint, brain fog, adrenaline fatigue and seizures. There is no cure and there is little awareness about this condition. Most doctors only know how to treat the symptoms - not the syndrome. Most patients with Dysautonomia are on a cocktail of up to 20 drugs....for the rest of their lives. Drugs only mask the symptoms, but many times, the life long side effects become even more devastating than the condition. After extensive research we have found a treatment center in Dallas, TX that can help her. Their approach is non-invasive and uses biofeedback, therapy and diet to teach patients how to control what we normally have never been able to control. Her struggle is real...and heartbreaking to watch. Everything has become increasingly difficult and she cannot continue to live like this. We are starting treatment this week (10/18/17). Drs at the treatment center have said she needs treatment 2 times a week for 3 months! We live in Houston and so this is going to be expensive to make that trip to Dallas every week. She'll be missing 2 days of school a week and so she will need tutors as well. Insurance is only going to cover a small portion of it, if anything. We just refuse to put her on all these drugs, so we are committed to making this work.

Will you please consider helping? If you know G, you know she loves the Lord. She is passionate about helping youth and being involved in missions. I know God has a special plan and purpose for her life and we need to help her get back to that plan. I ask that you prayerfully consider her cause and purchase a shirt (Please see the meaning of the Tourquise Dragonfly below).


We are trying to raise awareness so that treatment won't be so difficult to find. We just can't continue to rely on drugs, when there is a better way. Help us get G back on her feet and back in the game. I thank you and ask God's many blessings on all of you who will be Standing with G!

Symbol of Dysautonomia:
The Tourquise Dragonfly
Tourquise is a calming color, steadfast and strong. The word DRAGON means burden, hendrance and pain. FLY means to be carried through the air by the wind. When you have dysautonomia, it’s like trying to fly with a heavey weight...you are being blown back and forth in the wind. But you ARE a warrior and will spread your wings and continue to fly....steadfast and strong.