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Chromosome 9p-Minus Network Awareness Day

Organized by Jacqueline Bair
Po6144354 front
Chromosome 9p-Minus Network Awareness Day Fundraiser - unisex shirt design - front
Chromosome 9p-Minus Network Awareness Day Fundraiser - unisex shirt design - back
Chromosome 9p-Minus Network Awareness Day shirt design - zoomed
Chromosome 9p-Minus Network Awareness Day Fundraiser - unisex shirt design - front
Chromosome 9p-Minus Network Awareness Day Fundraiser - unisex shirt design - back
Chromosome 9p-Minus Network Awareness Day shirt design - zoomed
Gildan Ultra Cotton T-shirt

Buy an item to help us support our Network!

verified-charity
All funds raised will go directly to CHROMOSOME 9P- NETWORK
$790 raised
116 items sold of
50 goal
Thanks to our supporters!
$15
Gildan Ultra Cotton T-shirt, White Tee
Gildan Ultra Cotton T-shirt
White Tee
  • Chromosome 9p-Minus Network Awareness Day Fundraiser - unisex shirt design - small
  • Chromosome 9p-Minus Network Awareness Day Fundraiser - unisex shirt design - small
Organized by Jacqueline Bair

About this campaign

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We celebrate 9p-Minus Awareness Day every September 9th to help teach the world about the rare genetic condition that our children live with. The funds raised will help us run our small support network with everyday expenses and our annual triennial meeting.

The Chromosome 9pminus Network is a continually growing non-profit organization which welcomes you to learn, share, support, and connect. Our Network is solely comprised of parents and caregivers of individuals worldwide diagnosed with Chromosome 9p Deletion Syndrome, also known as "9pminus", "9p-," "Alfi's Syndrome," and/or "Monosomy 9p". For over 25 years, our Network families have been raising awareness by exchanging information, discussing challenges/achievements, and getting moral support for their 9pminus family member. This syndrome is an extremely rare chromosome anomaly, so many families with a loved one diagnosed with a 9p Deletion are left feeling isolated and yearning for information. Thanks to this Network, families now have a place to turn. Our Network strives to educate, foster hope, and develop a greater understanding amongst its members and the community at large. Whether you are already a Network family, a newly diagnosed family or someone who has been touched by a special person with 9p-minus, thank you for taking the time to view this website!


Supporters

Jessica Colarusso 1 item
Ivonne Hafner 2 items
Carlos Castelan 1 item

This support is for all the 9p-minus family.

Anonymous 2 items
Lori Isreal 2 items
Shannon Kahlig 1 item

To help and support Jacob Lawson who is sweet, kind, loving and very dear to my heart.

Lisa 2 items

My son Jacob has 9pminus and he is a blessing to us and puts a smile on people's faces all the time!

Amy Yarcich 2 items

Thanks so much to all our 9pminus family - the support and information over the last 10 years has made all the difference.

jacobs grammy :) 3 items

from the very beginning Jacob has been an inspiration and a blessing. the docs didn't really have a whole lot of answers for jakes mom and dad and I would just like to see more awareness and help for the families of these precious children <3

Frank and Gustavo 2 items

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