Hugs for Hailey

Hailey was diagnosed with Leukodystrophy, a white matter brain disease, in 2011. Then in 2015 Hailey was also diagnosed with a complete atrial ventricular heart block which required a pacemaker to placed and yet another surgery for our girl. Hailey's ys are filled with school where she is learning to read, something doctors told us she would never be able to do, and also therapy. Hailey is involved in every kind of therapy imagined both in and out of school. We attend physical therapy, occupational therapy, speech therapy and one of Hailey favorites is horse therapy.
The majority of Hailey's doctor appointments are out of state which require time off work, gas, hotel, and other travel expenses that adds up fast that is NOT covered by insurance.

You can follow Hailey's story from beginning until now on our blog. You can read about what she goes through from tests to surgeries, from working with the Make a Wish Foundation as Wish Ambassador, even our special Disneyland trips!
Or you can also follow us on social media like instagram and Facebook.

www.facebook.com/hugsforhailey