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Beckwith-Wiedemann Syndrome Awareness
Organized by Melissa Hughes
Gildan Ultra Cotton T-shirt
- Sizes YXS - XXXXL
- View Sizing Guide
About this campaign
If interested in onesies follow this link http://www.booster.com/bwsawarenessonesie
Haddie and I have it in our hearts to raise awareness for BWS and share some special items that provided comfort during her journey through tongue reduction surgery. Haddie's Smile Box is how we intend to do so. Each box will be filled with the things we found so very helpful during this tough time. We will pack them up and get them shipped off to families ready to embark on their own journey with tongue reduction.
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Supporters
Thank you for doing this for these precious little ones
Love this idea... I was so nervous packing for Jaxons last month!
Great granddaugter has BWS.
My grandson Joey was born with BWS this past April. Sadly he passed away from complications of this disorder. My heart goes out to any family dealing with BWS.
You're both so amazing! We love you!