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CLOVES Syndrome - CLOVES Awareness Day
More about the CLOVES Syndrome Community
CLOVES Syndrome stands for Congenital, Lipomatous, Overgrowth, Vascular Malformations, Epidermal Nevi and Spinal/Skeletal Anomalies and/or Scoliosis and was identified simultaneously and independently by Saap et al. and Alomari. CLOVES Syndrome has been diagnosed in about two hundred people worldwide.
CLOVES Syndrome is a non-hereditary disease that affects multiple systems and parts of the body. For many people, living with CLOVES Syndrome can lead to pain, challenges with mobility, overgrowth, neurological deficits and a host of other problems. There is no cure for CLOVES Syndrome and there are limited treatment options.
The vision of CLOVES Syndrome Community is an improved quality of life for people living with this rare disease. Learn more about our mission and goals on our website at www.clovessyndrome.org