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#CureDravet 2020

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Organized by Dravet Syndrome Foundation
Po39898028 front
#CureDravet 2020 Fundraiser - unisex shirt design - front
#CureDravet 2020 Fundraiser - unisex shirt design - back
#CureDravet 2020 shirt design - zoomed
#CureDravet 2020 shirt design - zoomed
#CureDravet 2020 Fundraiser - unisex shirt design - front
#CureDravet 2020 Fundraiser - unisex shirt design - back
#CureDravet 2020 Fundraiser - unisex shirt design - front
#CureDravet 2020 Fundraiser - unisex shirt design - back
#CureDravet 2020 Fundraiser - unisex shirt design - front
#CureDravet 2020 Fundraiser - unisex shirt design - back
#CureDravet 2020 Fundraiser - unisex shirt design - front
#CureDravet 2020 Fundraiser - unisex shirt design - back
#CureDravet 2020 Fundraiser - unisex shirt design - front
#CureDravet 2020 Fundraiser - unisex shirt design - back
Hanes Tagless T-shirt

Join DSF and spread our mission to #CureDravet!

verified-charity
All funds raised will go directly to Dravet Syndrome Foundation, Inc.
$2,810 raised
192 items sold of
150 goal
Thanks to our supporters!
$20
Hanes Tagless T-shirt, Unisex Short Sleeve Tee - White
Hanes Tagless T-shirt
Unisex Short Sleeve Tee - White
  • #CureDravet 2020 Fundraiser - unisex shirt design - small
  • #CureDravet 2020 Fundraiser - unisex shirt design - small
  • #CureDravet 2020 Fundraiser - unisex shirt design - small
  • #CureDravet 2020 Fundraiser - unisex shirt design - small
  • #CureDravet 2020 Fundraiser - unisex shirt design - small
  • #CureDravet 2020 Fundraiser - unisex shirt design - small
Picture?width=80&height=80
Organized by Dravet Syndrome Foundation

About this campaign

This new design highlights our mission to #cureDravet! Support this campaign and receive your apparel to wear during Dravet Syndrome Awareness Month, June 2020! We will be looking for photos of our community members spreading awareness and showing their support for our mission to find a cure for this devastating illness. All proceeds benefit the Dravet Syndrome Foundation.

Dravet syndrome is a rare, catastrophic, lifelong form of epilepsy that begins in the first year of life with frequent and/or prolonged seizures.

Dravet Syndrome Foundation is a 501(c)(3) non-profit working to aggressively raise funds to research better treatment options for those living with Dravet syndrome and related intractable epilepsies and rare diseases. Since its inception in 2009, DSF has raised over $4.6 million for research and awarded over $160k in Patient Assistance Grants.

Previously known as Severe Myoclonic Epilepsy of Infancy (SMEI), it affects 1:15,700 individuals, 80% of whom have a mutation in their SCN1A gene [1]. While seizures persist, other comorbidities such as developmental delay and abnormal EEGs are often not evident until the second or third year of life. Common issues associated with Dravet syndrome include:
- prolonged seizures
- frequent seizures
- behavioral and developmental delays
- movement and balance issues
- orthopedic conditions
- delayed language and speech issues
- growth and nutrition issues
- sleeping difficulties
- chronic infections
- sensory integration disorders
- disruptions of the autonomic nervous system (which regulates things such as body temperature and sweating)

Current treatment options are limited, and the constant care required for someone suffering from Dravet syndrome can severely impact the patient’s and the family’s quality of life. Patients with Dravet syndrome face a 15-20% mortality rate due to SUDEP (Sudden Unexpected Death in Epilepsy), prolonged seizures, seizure-related accidents such as drowning, and infections. Research for a cure offers patients and families hope for a better quality of life for their loved ones.



Learn more at www.dravetfoundation.org

Supporters

Jeremy J Dotson 1 item + $10

I have a family member that has Dravet Syndrome. She just turned 10 this year, and her parents have done so much to fight against Dravet syndrome. Constant struggles of seizures, dieting, the learning curve all together.

Melissa Shenoy 1 item

For my niece!

Michael Flurie 1 item

For my niece Julia.

Matthew Krolak 2 items

For Mason, and the many others in this fight!

Erin Frost 2 items

For my daughter Mia!

Barbara Book 1 item

In search of Julia's miracle

Jeff Pastorius 2 items

My daughter suffers from this disorder.

Anonymous 2 items
Anonymous 4 items
Laura Oliver 3 items

Comments

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