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Dravet Syndrome Awareness Hat
Sportsman Unstructured Washed Hat
- Sizes One Size
About this campaign
Dravet Syndrome Awareness Day is coming up on June 23. All proceeds from this fundraiser will go to the Dravet Syndrome Foundation! Help us raise awareness and help find a cure!
Our daughter, Luella, started having seizures at 9 months old. She was diagnosed with Dravet syndrome about a year later. After many difficult years in the beginning, around age 5 or 6 we began to see improvements with seizure control. She is currently 11 years old and so far beating many of the odds. She has currently gone over 585 days without a seizure! We are so happy with her progress but we know how quickly things can change. We want to continue to raise money for the Dravet Syndrome Foundation to help find a cure for Luella and so many others like her! Please help us spread awareness and help DSF continue to fund research so someday we might have a CURE!
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Share Why You Support "Dravet Syndrome Awareness Hat"
Supporters
For my daughter...
for Luella
For Berkley
For my son with dravet
So kids with Dravet can have some hope forba great, long life!
Like Ms Luella, my daughter has Dravet syndrome, and in the 30 years of her life and 10 years since Diagnosis ... DSF has been a lifeline for research, support and awareness. Good Work Heather
My son has Dravet. We want a cure like everyone else!