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Fighting For Maya

Organized by Beau James
Po7469458 frontladies
Fighting For Maya Fundraiser - unisex shirt design - front
Fighting For Maya Fundraiser - unisex shirt design - back
Fighting For Maya shirt design - zoomed
Fighting For Maya shirt design - zoomed
Fighting For Maya Fundraiser - unisex shirt design - front
Fighting For Maya Fundraiser - unisex shirt design - back
Fighting For Maya Fundraiser - unisex shirt design - front
Fighting For Maya Fundraiser - unisex shirt design - back
Fighting For Maya Fundraiser - unisex shirt design - front
Fighting For Maya Fundraiser - unisex shirt design - back
Gildan Ladies 100% Cotton T-shirt

Help us fund research to treat and cure TPP1 Deficiency.

Custom Ink
All funds raised will be paid directly to Texas Children's Hospital for Research of treatments and a cure for Atypical TPP1 Deficiency.
38 items sold
$260 raised
50 goal
Thanks to our supporters!
$15
Gildan Ladies 100% Cotton T-shirt
Ladies - Black
  • Fighting For Maya Fundraiser - unisex shirt design - small
  • Fighting For Maya Fundraiser - unisex shirt design - small
  • Fighting For Maya Fundraiser - unisex shirt design - small
  • Fighting For Maya Fundraiser - unisex shirt design - small
Organized by Beau James

About this campaign

100% of profits from this project are used to fund research for treatments and a cure for Atypical TPP1 Deficiency.

b249jpgWe are very excited to announce, that after several months of investigation, we have decided to fund a four year research project at the Jan and Dan Duncan Neurological Institute at Texas Children's Hospital, in Houston, Texas. We have spent considerable time collaborating with Dr Marco Sardillo, the Principal Investigator, a his team to design a research project that is intended to directly benefit Maya and people with similar disorders. We would like to invite you to help support this research project and raise awareness by purchasing a "#fightingforMaya" t-shirt and more importantly to wear it every Friday.
In 2014, Maya was diagnosed with Atypical TPP1 Deficiency. While TPP1 deficiencies are typically associated with

Late Infantile Neuronal Ceroid Lipofuscinosis 2 (CLN2), a form of Batten Disease, a subset of cases has been described as milder, which can be explained by the comparatively higher residual activity of TPP1 in Atypical TPP1 patients compared to CLN2 patients. Atypical TPP1 Defficincey and CLN2 are caused mutations in the TP1/CLN2 gene resulting in deficiency of the enzyme tripeptidyl peptidase 1 (TPP1). In the absence of TPP1, lysosomal storage materials, normally metabolized by this enzyme, accumulate in many organs particularly in the brain. Buildup of these storage materials in the cells of the nervous system contribute to progressive and relentless neurodegeneration which manifests as loss of cognitive, motor, and other functions. Patients typically present initially with language delay followed by movement disorders, motor deterioration, dementia, and early death. During the later stages of the disease, feeding and tending to everyday needs become very difficult. Currently, there is no cure for TPP1 ficiency or CLN2. www.fightingformaya



Supporters

Abby Stephenson 2 items
Anonymous 16 items
Angela 7 items
Anh Luc 1 item
Alison Breidenstein 2 items

I support this campaign because I love Maya and want to see her and other beautiful and amazing kids like her live long, happy, healthy lives full of dancing, running, singing, and learning. I want Maya to have what so many of us take for granted.

Anonymous 1 item

Because Maya's fight is our fight and we will keep #fightingformaya!

Melissa, Ronan, & Mimi 1 item + $73

With lots of Love and Prayers!

Tanya Tveit 5 items

We support Maya & her family & want them to have all the best opportunities to fight this rare disease!

Jen 1 item + $100

#fightingformaya

Dixie bergeron 1 item

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