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Enough of the "rare" label for DIPG and other childhood cancers!

Organized by Janet Demeter
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Enough of the "rare" label for DIPG and other childhood cancers! Fundraiser - unisex shirt design - front
Enough of the "rare" label for DIPG and other childhood cancers! Fundraiser - unisex shirt design - back
Enough of the "rare" label for DIPG and other childhood cancers! shirt design - zoomed
Gildan Ultra Cotton Long Sleeve T-shirt

Help Jack's Angels raise awareness for DIPG and pediatric cancer.

verified-charity
All funds raised will go directly to Jack S Angels Inc .
25 items sold
$110 raised
50 goal
Thanks to our supporters!
$20
Gildan Ultra Cotton Long Sleeve T-shirt
Unisex - White
Organized by Janet Demeter

About this campaign

Jack's Angels Inc was formed to raise awareness for DIPG (diffuse intrinsic pontine glioma), support the afflicted, and support research funding for this pediatric brain tumor that has silently devastated hundreds of US families each year for decades.

IMG_3801JPG                        (picture of Jack, beloved son, 8/30/08-7/30/12)
DIPG, diffuse intrinsic pontine glioma, is responsible for 80% of pediatric brain
tumor deaths annually
, brain tumors being the leading cause of cancer related death in children.  For decades DIPG has had no survivors yet, like most all other childhood cancers, it is marginalized as a "rare" or "orphan" disease--a pharmaceutical industry appellation--and thus labeled undeserving of research funding.  Many of the parents of children afflicted with DIPG and other deadly childhood cancers that have seen no progress in 40 years are beginning to stand together in sending the message that this is an unacceptable reality in the United States of America.  The National Cancer Institute's annual budget for research allows only 4% to benefit research for childhood cancers as a whole.  A large portion goes to cancers for which we have already developed helpful therapies.  We would like to see our children’s lives precede corporate profit margins in the decision-making process regarding the delegation of funds, that there should be no question about it.  No short-term research investment profits should be considered more important than pediatric cancer research that most oncologists agree could, in its progress, signify a quantum leap for our science and understanding of biology.

Jack's Angels Foundation's programs for raising awareness include supporting the arts and education for children in our local community(Santa Clarita Valley, Acton-Agua Dulce).  Our annual event "Art for Jack" is evolving into a music and art festival for children for 2015.  We are collaborating with Center Stage Opera, based in the San Fernando Valley, in forming a children's choir to concertize and participate in CSO's production of "Carmen" in June 2015.  The events raise awareness and proceeds benefit the DIPG research fund at Children's Hospital Los Angeles, established in 2013.  We hope to encourage and support the formation of such funds at every children's research institution in the US in the next 5-7 years.  "Project Angelbox," in its beginnings, strives to provide a newly diagnosed family with comfort in the hospital, and art supplies to any child who's family makes a request or a to whom a representative of Jack's Angels reaches out.  All of our work is volunteer-based and donation funded.  We currently have no sponsors, and are concerned with the survival of our new organization.  Your support in buying a t-shirt, and in so-doing helping us to raise awareness for the unacceptable numbers concerning the lack of funding for childhood cancers, is priceless.  Thank you for considering the lives of these families that have been devastated.  Our prayer remains, on the t-shirt:  "May light and hope one day replace grief and despair at diagnosis for DIPG children and their families."
'Focus on Pediatric Cancer' Conference, Feb. 14, 2014, NIH, Bethesda MD

Supporters

Judi Newton Nathan's Army on a Mission Against DIPG 2 items

We are in this fight together and we WILL win!!!

Ginger Balkcom 1 item

I support Janet and her cause because I love children.

Carli Terreault 1 item

for my cousin Jack Jack

Anonymous 2 items + $55
Kati Gonzalez 1 item

Jack jack is my cousin, 4% is not enough.

Dana Marsh 1 item
Ada 2 items

We Love Jack's.

Anonymous 2 items

Spread the WORD

Annette 5 items

Childhood cancer deserves much more support across the board then they get!!! Cancer must be stopped at all levels today not tomorrow!!!!!

Anonymous 1 item

For RJ.

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