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For Josie & Lily

Organized by Brittany Weiss
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For Josie & Lily Fundraiser - unisex shirt design - front
For Josie & Lily Fundraiser - unisex shirt design - back
For Josie & Lily shirt design - zoomed
For Josie & Lily shirt design - zoomed
For Josie & Lily Fundraiser - unisex shirt design - front
For Josie & Lily Fundraiser - unisex shirt design - back
For Josie & Lily shirt design - zoomed
For Josie & Lily shirt design - zoomed
For Josie & Lily Fundraiser - unisex shirt design - front
For Josie & Lily Fundraiser - unisex shirt design - back
For Josie & Lily shirt design - zoomed
For Josie & Lily shirt design - zoomed
For Josie & Lily Fundraiser - unisex shirt design - front
For Josie & Lily Fundraiser - unisex shirt design - back
For Josie & Lily shirt design - zoomed
For Josie & Lily shirt design - zoomed
For Josie & Lily Fundraiser - unisex shirt design - front
For Josie & Lily Fundraiser - unisex shirt design - back
For Josie & Lily shirt design - zoomed
For Josie & Lily shirt design - zoomed
Gildan Midweight 50/50 Pullover Hoodie

Please help support the Twin to Twin Transfusion Syndrome (TTTS) Foundation in the fight against TTTS in memory and honor of our precious daughters, Josephine and Lily Weiss.

verified-charity
All funds raised will go directly to Twin to Twin Transfusion Syndrome Foundation, Inc.
$1,360 raised
54 items sold of
50 goal
10 Days To Go
$40
Gildan Midweight 50/50 Pullover Hoodie, Unisex - Light Blue
Gildan Midweight 50/50 Pullover Hoodie
Unisex - Light Blue
  • For Josie & Lily Fundraiser - unisex shirt design - small
  • For Josie & Lily Fundraiser - unisex shirt design - small
  • For Josie & Lily Fundraiser - unisex shirt design - small
  • For Josie & Lily Fundraiser - unisex shirt design - small
  • For Josie & Lily Fundraiser - unisex shirt design - small

Spread the word!

Sharing is one of the best ways to help raise funds for Twin to Twin Transfusion Syndrome Foundation, Inc.!

Organized by Brittany Weiss

About this campaign

As you may know, we lost our beautiful twin daughters on June 1, 2022 as a result of Twin to Twin Transfusion Syndrome (TTTS) and its complications. TTTS only occurs in identical (monochorionic) twin/triplet or higher multiple pregnancies where the babies are sharing a placenta. It happens in about 15% of these types of pregnancies. Both of our girls were perfectly healthy; TTTS is solely a disease of the placenta that is being shared by both babies.

TTTS is completely random and there is nothing you can do to prevent it from happening. There is nothing that predisposes you to it or makes it more likely that you will develop it. It is not genetic. It is not age-related. It is not caused by anything the parents did, or anything the babies did. Both the babies and the parents are innocent bystanders. TTTS can happen to anyone pregnant with monochorionic twins/triplets/higher multiples.

TTTS involves an unequal sharing of blood through connections in the placenta. One twin (donor) pumps blood to the other twin (recipient) which causes the recipient to receive too much blood and the donor to receive too little. The increased blood volume causes the recipient to produce more than the usual amount of urine, resulting in excess amounts of amniotic fluid. The donor produces less than the usual amount of urine, resulting in too little amniotic fluid. This condition is very dangerous for both babies.

The TTTS Foundation is dedicated to providing immediate and lifesaving educational, emotional and financial support to families, medical professionals and other caregivers before, during and after a diagnosis of twin to twin transfusion syndrome including TAPS, SIUGR, and TRAP.

December is International TTTS Awareness Month. World TTTS Awareness Day specifically is on December 7. Awareness month was founded by the TTTS Foundation as a collaborative effort around the world to increase awareness and educate the public of the risks of being pregnant with monochorionic twins, triplets, and higher multiples and directing them to the TTTS Foundation for immediate help and information during their pregnancies.

The shirts and sweatshirts are all light blue in color because The TTTS Foundation is fighting for the day after the storm, when the skies turn blue and all of the babies will survive, be healthy and thrive like daisies flourishing in a field. All babies affected by TTTS are called Daisy Babies.

The TTTS Foundation has been wonderful in supporting our family through this difficult time. The Foundation has connected us with other families who have lost both of their twins to this disease and we know we are not alone. Our hope and prayer is that no family has to suffer like we are through the devastating heartbreak of losing their beautiful babies to this terrible disease. That is why we support The TTTS Foundation in their journey to fight TTTS.

We hope to honor our Josie and Lily by increasing awareness and helping to save lives in the future.

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In early February of 2022, Zack and I were overjoyed to find out I was pregnant.
A couple of weeks later at our 8 week ultrasound, we found out we were having identical twins! It was such a special moment that I will never, ever forget. I still have flashbacks to that ultrasound when the tech looked at us and said “There’s your baby, and there’s your OTHER baby.” I screamed so loud, and immediately began crying tears of happiness. Zack could not believe I was right, as I had been telling him I had a feeling it was twins. In fact, I had been telling Zack long before I was even pregnant that I just had a feeling we would have twins someday. I even started praying for twins and our prayers were answered.

As the weeks went by and we shared the news, our friends and family were so shocked and beyond excited to find out we would be having identical twins! We were over the moon. After finding out we were having twins, we were transferred from my Dr. to high risk pregnancy specialists. We knew the pregnancy was high risk and we were monitored every two weeks through ultrasound for signs of TTTS.

Everything was going smoothly. At our 16-week appointment, we somewhat inadvertently found out that the babies were girls and we were on cloud 9. We were so thrilled as we pictured life with two little princesses. However, they told us to wait until the 18-week appointment to confirm the gender, so we kept this little secret to ourselves for two weeks. I had wanted to be surprised with the gender; Zack wanted to find out. In hindsight, I am so, so happy we found out the way we did and when we did. I sometimes feel that was God’s way of letting us enjoy the news of two little girls before they went to heaven with Him. We went to Naples, Florida that week on a little babymoon, and were able to really enjoy and look forward to the life we had planned ahead.

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A couple of weeks later things took a turn. At 19 weeks and 4 days, we received a diagnosis of Stage III TTTS. That same night, I underwent emergency surgery to try and correct the TTTS. We had no choice but to do the surgery. Things were progressing so quickly that if we did not do it, we would have lost them both in a matter of days to the TTTS. The emotions of that day were so overwhelming. It was so much to take in. We prayed and prayed. We had people from all over the world praying for us and our babies. Both babies survived the surgery and we were so, so thankful. We knew we were not out of the woods completely and that we would need continued monitoring at least once a week and I was also to be on bed rest for the remainder of the entire pregnancy.

However, two days after surgery, my water broke at home and I was going into labor. Water breaking and/or preterm labor were risks of the surgery, but we had to do the surgery to save our daughter’s lives from the TTTS. We tried everything we possibly could to save our babies, but our beautiful angels, Josephine Lynne and Lily Pamela, were born on June 1, 2022, at just 20 weeks and 2 days. Their middle names are after their grandmothers.

We held Josephine and Lily in our arms and took pictures with them. They were absolutely beautiful and perfect. They had such a special bond with each other. They melted our hearts as well as the Drs. in the room. They were baptized by a chaplain. It still breaks my heart that I was powerless to stop all of this.

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Losing them broke our hearts and left us completely devastated, but we will always, always cherish the time that we had with them, and the time I knew them in my belly. We will always dream of who they would have been. They are the first thought that crosses my mind every single morning. They will always be a part of our family. Our first-born children. I carried them for 5 months but they impacted our lives immensely and our love for them is forever.

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We are so thankful that we are lucky enough to be the mommy and daddy of two perfect angels. I know they are in their TRUE home in heaven. We look forward to reuniting with our sweet Josie and Lily again someday, and I know it will be beautiful. Until that day comes, I know they are in perfect peace and happiness in God’s arms.

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Thank you for your support in the fight against TTTS in memory of our beautiful daughters. It is so important to us to keep their memory alive.

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Supporters

Laureen Ensworth 1 item

In memory of Josie and Lily Weiss

Mary Lee Henning 1 item

In Loving memory of Josie and Lily Weiss

Megan Sullivan 1 item + $25
Letitia Geanon 1 item + $25

My niece lost her twin girls to TTTS. Josie and Lily

Kim Vari 1 item + $25
Jack & Margie Love 1 item + $50

God Bless the Weiss family!

Lindsay Schaults 1 item + $50

Josie and Lily will forever hold a special place in our hearts

Katie Bowes 3 items

Always in our hearts ❤️ ❤️

Thomas A 1 item
Amanda and Eric Manley 2 items

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