For Josie & Lily
Please help support the Twin to Twin Transfusion Syndrome (TTTS) Foundation in the fight against TTTS in memory and honor of our precious daughters, Josephine and Lily Weiss.
About this campaign
As you may know, we lost our beautiful twin daughters on June 1, 2022
as a result of Twin to Twin Transfusion Syndrome (TTTS) and its
complications. TTTS only occurs in identical (monochorionic)
twin/triplet or higher multiple pregnancies where the babies are
sharing a placenta. It happens in about 15% of these types of
pregnancies. Both of our girls were perfectly healthy; TTTS is solely a
disease of the placenta that is being shared by both babies.
TTTS is completely random and there is nothing you can do to prevent it from happening. There is nothing that predisposes you to it or makes it more likely that you will develop it. It is not genetic. It is not age-related. It is not caused by anything the parents did, or anything the babies did. Both the babies and the parents are innocent bystanders. TTTS can happen to anyone pregnant with monochorionic twins/triplets/higher multiples.
TTTS involves an unequal sharing of blood through connections in the placenta. One twin (donor) pumps blood to the other twin (recipient) which causes the recipient to receive too much blood and the donor to receive too little. The increased blood volume causes the recipient to produce more than the usual amount of urine, resulting in excess amounts of amniotic fluid. The donor produces less than the usual amount of urine, resulting in too little amniotic fluid. This condition is very dangerous for both babies.
The TTTS Foundation is dedicated to providing immediate and lifesaving educational, emotional and financial support to families, medical professionals and other caregivers before, during and after a diagnosis of twin to twin transfusion syndrome including TAPS, SIUGR, and TRAP.
December is International TTTS Awareness Month. World TTTS Awareness Day specifically is on December 7. Awareness month was founded by the TTTS Foundation as a collaborative effort around the world to increase awareness and educate the public of the risks of being pregnant with monochorionic twins, triplets, and higher multiples and directing them to the TTTS Foundation for immediate help and information during their pregnancies.
The shirts and sweatshirts are all light blue in color because The TTTS Foundation is fighting for the day after the storm, when the skies turn blue and all of the babies will survive, be healthy and thrive like daisies flourishing in a field. All babies affected by TTTS are called Daisy Babies.
The TTTS Foundation has been wonderful in supporting our family through this difficult time. The Foundation has connected us with other families who have lost both of their twins to this disease and we know we are not alone. Our hope and prayer is that no family has to suffer like we are through the devastating heartbreak of losing their beautiful babies to this terrible disease. That is why we support The TTTS Foundation in their journey to fight TTTS.
We hope to honor our Josie and Lily by increasing awareness and helping to save lives in the future.