Kaleb's Story 2

My name is Michael Cole, my wife (Krysta Cole) and I have a son named Kaleb. Kaleb is2 yearsold, at 12 months oldKaleb was diagnosed with a rare mitochondrial disorder known as Leigh's disease. Leigh's disease is a rare inherited neurometabolic disorder that affects the central nervous system. Symptoms of Leigh's disease usually progress rapidly. The earliest signs may be poor sucking ability, and the loss of head control and motor skills. These symptoms may be accompanied by loss of appetite, vomiting, irritability, continuous crying, and seizures. As the disorder progresses, symptoms may also include generalized weakness, lack of muscle tone, and episodes of lactic acidosis, which can lead to impairment of respiratory and kidney function. Though Kaleb does not have all of these symptoms he does have a few including seizures, muscle spasms, loss of motor control, and developmental delays. With these symptoms comes the need for handicap equipment, extra time from both my wife and I, and trips to theLeighs Clinic in Houston Texas.This booster is to raise awareness and to supplement the loss of income that we have experienced. It is my goal that this booster will help not only my family but one day help other families that have children whosuffer from mitochondrial disorders. Our heart and prayers go out to all the families who have or hadchildren thatare sick. We know from experience how devastating it is and how helpless you can feel. Remember everything will be alright in the end, and if it's not alright then it isn't the end. Continue to fight on! Thank you for all your support. Michael, Krysta and Kaleb