Life Life Full for Prader-Willi Syndrome

About this campaign

We are raising awareness and funding for Prader-Willi Syndrome. PWS is a complex genetic disorder affecting appetite, growth, metabolism, cognitive function and behavior. It is typically characterized by low muscle tone, short stature (when not treated with growth hormone), cognitive disabilities, behavioral problems, and the hallmark characteristics – chronic feelings of insatiable hunger and a slowed metabolism that can lead to excessive eating and life-threatening obesity. There is no cure or approved treatment for PWS. We're raising money to support research that will one day allow individuals with PWS to Live Life Full!