"I Wear Blue For Bentley."

Bentley was born December 18, 2012 in Charleston, WV. He was born with an extremely rare chromosome disorder called, "Wolf-Hirschhorn Syndrome". He was in NICU for 9 days. Doctors told us Bentley may never walk, talk, crawl, or even sit up on his own. Now, at 15 months old, he is sitting up, crawling, and saying a few words. Doctors in West Virginia know nothing about WHS, there are only three with the syndrome, including Bentley, in West Virginia. The WHS national conference has brought many families together to learn more about raising a special child.