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Pitt Hopkins Syndrome Awareness Day Fundraiser
Gildan Ultra Cotton T-shirt
- Sizes YXS - XXXXL
- View Sizing Guide
About this campaign
Help us raise awareness and funds! All money raised will go directly to the Pitt Hopkins Research Foundation.
For additional design options, click here!
What is Pitt Hopkins?
Pitt Hopkins is a rare and severe
neuro-developmental disorder caused by a mutation of the TCF4 gene on the 18th
chromosome. It is characterized by profound developmental delays, problems with
motor coordination (ataxia) and balance, breathing abnormalities, seizures and
severe intellectual disability. Most individuals with Pitt Hopkins do not
develop functional speech. Pitt Hopkins affects all races and both genders
equally.
Since the gene that causes Pitt Hopkins was only found in 2007,
currently there are less than 350 children in the world diagnosed with this
syndrome, however we believe there are many more.
OUR
RESEARCH
Every
cent raised from the sale of these shirts will go directly to research- and this
research is truly cutting edge. If you know anyone with ALS, Alzheimer's or
Autism, then this is of interest because single gene disorders like Pitt Hopkins
(where the cause has been identified) is one of science's best hopes for finding
treatment for other genetic disorders. This research affects us
all.
Comments
Share Why You Support "Pitt Hopkins Syndrome Awareness Day Fundraiser"
Supporters
for Sarah
If you have never done charity work for organizations you have no idea what the relatives and parents go through. The children are a gift to us, to love and take care of. The challenge to the family is enormous and a 24 hour 7 days a week.
Layla Harrelson has to be the most precious child I have met. She is a daily inspiration to me!!!
As an Educational SLP I have worked with many students with all types of rare disorders. Each of them have been a joy to work with and have taught me more than I could ever teach them. God bless them and their families!
To assist with research for this disorder and because I love Tiffany Patten and Seth and Carter.
I am supporting an awesome mom named Tiffany and her amazing twins, Seth and Carter!
My friend has twin boys with Pitt-Hopkins, I want to support in the research of this syndrome. This is for Seth and Carter.