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CRMO Awareness

Organized by Cassandra Kessel
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CRMO Awareness Fundraiser - unisex shirt design - front
CRMO Awareness Fundraiser - unisex shirt design - back
CRMO Awareness shirt design - zoomed
Jerzees 50/50 T-shirt

Help us raise money for further research to find a cure or way to prevent this nasty disease!!!

Custom Ink
All funds raised will be paid directly to Dr. Polly Fergusen, Pediatric Rheumatologist for Research of CRMO and for patients without insurance.
$1,040 raised
76 items sold of
500 goal
Thanks to our supporters!
$20
Jerzees 50/50 T-shirt, Unisex - White
Jerzees 50/50 T-shirt
Unisex - White
Organized by Cassandra Kessel

About this campaign

This fundraiser is to help bring awareness to CRMO or Chronic Recurrent Multifocial Osteomyelitis. It is a Auto-Inflammatory Disease of the bone(some also classify it as an Auto-Immune since it involves the bone marrow.) 
All the funds will to to Dr. Polly Ferguson at the University of Iowa Children's Specialty Clinic in Iowa City, IA for her to continue her research and to help patients who don't have insurance that she sees for free.

Dr. Polly Ferguson is a Pediatric Rheumatologist that helps people of all ages, infant to 90 years old. If you have CRMO or even think you have it she will look over your information, your medical record and if she thinks it's a possibility she will see you. She is one of the most inspirational doctors that many say they have ever met in their lives. 
CRMO is a bone disease that affect mostly children but there are plenty of adults that are unfortunately affected too. This disease is found mostly in girls (5-1 ratio, girls-boys) CRMO is also a 1 in a million disease. Here is a little more info on the disease.
Chronic Recurrent Multifocal Osteomyelitis is an autoinflammatory disease that mostly affects children. The causes of the disease have been linked to gene mutations in some cases, especially on chromosome18q in one family. More research is needed on the genetic causes of this challenging condition. 

CRMO presents in patients with periodic fevers, bone pain and bone lesions that can develop anywhere in the body. This is a rare disease, that has been found to affect more girls than boys. The peak for symptom incidence is around 10 years of age, but symptoms can be present from toddler or preschool age to even when patients are on middle age or older. Some patients can have many affected areas in their body, or only a few sites in their body. 

Children will develop deep aching pain, limping, tenderness over affected areas and often fevers. Common sites are the long bones of the body, the collar bone (clavicle) and shoulder girdle. The spine, ankles and feet may also be affected. 

Patients may also present with skin manifestations, such as psoriasis, acne, or pustules on the hands and feet. Some patients may also have uveitis, or inflammatory bowel disease along with CRMO symptoms. Another autoinflammatory disease, Majeed, involves CRMO, but also presents with symptoms of congenital dyserythropoietic anemia and Sweet Syndrome. Majeed is linked to an autosomal recessive inheritance of an LPIN2 gene mutation from both parents, and is a very rare disease. 

Please go to this site for more detailed information on CRMO at this link:http://www.bonetumor.org/tumors-unknown-type/chronic-recurrent-multifocal-osteomyelitis-crmo

Supporters

Kelly Mills 3 items
Anonymous 4 items

Our Grandson is bravely dealing with his new normal with CRMO

Brittany Miller 2 items + $100
Brenda Hertel 5 items
Laura Aarhus 1 item + $100

Family members suffer from this.

Sherri Mellos 3 items

We all have to support research so that hopefully someday our kids won't suffer!

Faith Murray 1 item
Stephanie Allen 2 items

My son was diagnosed when he was 8 but has had it since he was 5. Due to the rarity of this disease he went through so many tests and biopsies to get diagnosed. If we can spread awareness others will not have to go through what my son went through.

Jennifer Brooks 1 item + $25
Anonymous 1 item + $180

My Cousin has CRMO and I see the pain she struggles with at such a you g age. I want to help find a cure for her and everyone else who struggles through life with this.

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