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Living LFS Have You Hugged a MUTANT Today?
Gildan 50/50 T-shirt
- Sizes YXS - XXXXXL
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About this campaign
Li Fraumeni Syndrome is a hereditary cancer syndrome. Living LFS is a newly formed organization that aims to provide support and information to those with LFS. We want to help mutants get together, share their stories and help each other find the best resources to LIVE with LFS. We are organizing a Meeting in Portland, Oregon in October and funds will go directly towards providing a space for mutants to gather and find community. Our vision is to have meetings in many different locations and enough financial support to make meeting other mutants easier on this already physically and financially challenged population.
Living LFS is a group of mutants who met in a Facebook Support Group online and found a sense of community and understanding none of them had ever experienced before. With more cancers than they could count between them and a whole lot of snark- they finally got to meet in Boston in 2013. Together, they are trying to help fill various needs of support and awareness that is so direly needed in the LFS community. We want to bring mutants together to share their stories, increase the awareness of LFS so that mutants can get better screening and treatment and ultimately fund research that will put more LIVING in LivingLFS.http://livinglfs.org/
Comments
Share Why You Support "Living LFS Have You Hugged a MUTANT Today?"
Supporters
To support my cousin Jen and in loving memory of her families members.
I know a mom and her son who both have LFS and she is the most amazing person who's strength everyone could learn by!!
Never got to know the cousins that were lost, but the ones that are here remind me almost daily of why crappy stuff happens to us: because we are surrounded by love and can take anything. TEAM MILLS
The LFS is in my family!! And I have watched my cousin go through many different cancers, and I am so proud of her everyday!!!
We love our mutants!
Anything to help our friend Jen battle LFS!
We support this campaign in memory of, and in honor of the Mills Family Members.
For our awesome neighbors.
This gene has taken a heavy toll on my family. Many have not survived. I am fortunate enough not to be a carrier. This donation is for the ones fighting their battles everyday and night, year after arduous year. You are all in my prayers continually.