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Gemma's Krabbe Journey
Gildan Ultra Cotton T-shirt
- Sizes YXS - XXXXL
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About this campaign
Gemma is a precious gift from God to our family. I am honored and blessed to be her Aunt. She is such a beautiful little girl and has touched so many lives. Proceeds from this fundraiser will go towards travel for Gemma, her Mommy and Daddy to go to the Hunters Hope Krabbe Family Symposium this summer. We are also trying to raise awareness of this horrible disease that we knew not ng about until March. I have included part of Gemma's story below in the Full Story section. Please keep Gemma's Mommy, Daddy, brothers, sister and our whole family in your prayers as we treasure each day we have with our beautiful girl.
On March 11,2014 our family's life changed forever. Gemma's MRI confirmed that she had Krabbe disease. Krabbe is fatal and progresses quickly. Krabbe is a genetic disease that is passed to a child when both parents carry a recessive gene.
1 in about 100,000 children are born with Krabbe, though 1 in 125 people carry the recessive gene. The chances that 2 recessive gene parents meet/have a baby is 1 in 10,000. Daniel and I have terrible odds.
Gemma is our rainbow baby; a rainbow baby is the bright beautiful child that is born after the storm of a miscarriage. Gemma is extra special because she comes after 3 miscarriages. She completed our wildly blended family.
Gemma has 4 siblings: Charlie (Mommy's son) age 7, Gabriel (Daddy's son) age 8, a sister Crystal (Daddy's stepdaughter) age 17, and her biggest brother Patrick (Daddy's stepson) age 15. Her parents are Daniel Timothy Ward and Tina Dodd Ward.
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Supporters
love you Gemma and prayers that you raise what is needed!
Gemma is such a blessing and had touched many lives
Dancing in the rain with you, Gemma Rose!
These precious ones need alot of love and care