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Bubby's Customized Voice
Organized by Brittney Mosher
Hanes Tagless T-shirt
- Sizes YXS - XXXXL
- View Sizing Guide
About this campaign
Thomas was diagnosed with genetic neuromuscular disorder called Spinal Muscular Atrophy -Type 1 at 4 months old. Despite this terminal diagnosis, Thomas aka "Bubby" is beating the odds and thriving! His mind is not at all effected by his condition so he uses an eye gaze communication device to speak with us. His voice is part of his personality and identity. Right now he sounds like a old robot man. It's him, but it's not. We want to give him a voice of his own. A real, customized voice of the little boy that he is.
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Supporters
I've had the privilege of working with Thomas and his family as his speech therapist. He is such a blessing to those around him. He puts a smile on my face every time I see him!
I love my lil' fighting grandson and will continues to show my support. I can't wait to see him use his eye gaze communication device!
Bubby's sweet little face makes me smile and I can't wait to hear his voice!!
I met bubby and his family once and loved them all. They are some pretty amazing people! I wish and hope nothing but the best for all of them! I will proudly wear my shirt to help spread awareness of SMA!
SMA families support each other.
Bubby inspires me every day. And so does his mom. He deserves a voice that matches his strength, and also how adorable he is. And his mom deserves to hear her boy. Go Bubby go!
my son has sma also