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Priest Family Strong
Hanes X-Temp Baseball Raglan
- Sizes S - XXXL
- View Sizing Guide
About this campaign
It't that time of year again! September is Leukodystropy Awareness Month and our family was not only affected with one child having MLD, but three of our four children have been diagnosed. Our oldest, Kathleen (7) is now immobile and needs a wheelchair to get around. We have recently purchased a van but we are in need of converting it so Kay can ride comfortably and supported properly in her wheelchair. This conversion costs upwards of $20,000 as it will required lowering the floor and installing a suspension system that can withstand the extra weight of the ramp and rigging for wheelchair access. The money raised with this fundraiser will go toward getting the conversion as soon as possible as riding causes Kay pain and discomfort.
If we raise more than what we will need to have the conversion done, all other funds will go towards any and all medical expenses, travel, and medications that all three children will need in continuation of care.
Thank you so much for your contribution!!! Your generosity is appreciated more than you'll ever know!
Supporters
Supporting our luekodystrophy family. I have 3 boys with ALD!!! We all love and support each other!!! I will wear this shirt with pride!!
My best friend Jennifer Fisch’s two beautiful babies are MLD warriors. This disease has touched many lives. I hope you get your modifications quickly. <3
Supporting our MLD Family! Rock On! Love, the Flinchum Family