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PCH Awareness

Organized by PCH Awareness
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PCH Awareness Fundraiser - unisex shirt design - front
PCH Awareness Fundraiser - unisex shirt design - back
PCH Awareness shirt design - zoomed
PCH Awareness shirt design - zoomed
PCH Awareness Fundraiser - unisex shirt design - front
PCH Awareness Fundraiser - unisex shirt design - back
PCH Awareness shirt design - zoomed
PCH Awareness shirt design - zoomed
PCH Awareness Fundraiser - unisex shirt design - front
PCH Awareness Fundraiser - unisex shirt design - back
PCH Awareness shirt design - zoomed
PCH Awareness shirt design - zoomed
PCH Awareness Fundraiser - unisex shirt design - front
PCH Awareness Fundraiser - unisex shirt design - back
PCH Awareness shirt design - zoomed
PCH Awareness shirt design - zoomed
PCH Awareness Fundraiser - unisex shirt design - front
PCH Awareness Fundraiser - unisex shirt design - back
PCH Awareness shirt design - zoomed
PCH Awareness shirt design - zoomed
PCH Awareness Fundraiser - unisex shirt design - front
PCH Awareness Fundraiser - unisex shirt design - back
PCH Awareness shirt design - zoomed
PCH Awareness shirt design - zoomed
Gildan Ultra Cotton T-shirt

Buy a shirt to help raise awareness about PCH!

verified-charity
All funds raised will go directly to National Organization for Rare Disorders, Inc. .
466 items sold
$2,590 raised
500 goal
8 Days To Go
$15
Gildan Ultra Cotton T-shirt
charcoal T - Charcoal
  • PCH Awareness Fundraiser - unisex shirt design - small
  • PCH Awareness Fundraiser - unisex shirt design - small
  • PCH Awareness Fundraiser - unisex shirt design - small
  • PCH Awareness Fundraiser - unisex shirt design - small
  • PCH Awareness Fundraiser - unisex shirt design - small
  • PCH Awareness Fundraiser - unisex shirt design - small
Buy / Donate

Orders are delivered about 2 weeks after the campaign closes.

Organized by PCH Awareness

About this campaign

The PCH Community, composed of parents of children diagnosed with PCH, are coming together to raise awareness about Pontocerebellar Hypoplasia. Although these items are available at cost, should the campaign exceed expectation there is a possibility that funds may be raised. In this case all excess funds will be donated to the National Organization for Rare Diseases (NORD)

Pontocerebellar Hypoplasia is a rare genetic disorder consisting of several different types and subtypes. These types are identified by the gene that has caused the mutation. Due to the rare form of this disorder, there are still some types that have not yet been identified. These unknown types are identified by an MRI of the brain where the Pons and Cerebellum are underdeveloped. The Pons is the primitive brain, it controls many things we don't control: heart rate, temperature, breathing, swallowing, etc. The Cerebellum is the coordination center of the brain. Most children with PCH have a hard time sitting, standing, reaching for an object, balance, etc. Often times, seizures are associated with this disorder along with feeding and breathing difficulties. It's a very complicated disorder, with only treatment to symptoms... no cure.

The PCH community works together to help each other with guidance and support. Although the community is spread throughout the world, the community has come together as a family to help each other through this hard and unpredicted life.


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Supporters

Meredith Reed 2 items
Ashley Davis 2 items
Kaiti Luyt 22 items

For our angel Layla and all the other sweet PCH children.

Erin Balfour 1 item

I'm supporting my niece Kamryn

Beth Fresa 6 items

My baby and her PCH friends ❤️

Ashley Villere 5 items

My daughter has MICPCH which her name is on the shirt, I will always support her and others like her!

Marla Whitmore 1 item
Anonymous 1 item
Dan Blais 1 item
Cynthia Mosley 5 items

In honor of our son, Noah. He didn’t receive his PCH dx until he was 16 yrs old & we had never heard of anything like it. If this shirt causes one person to look up PCH, then it’s a success.

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