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Pitt Hopkins-Syndrome Awareness Day Fundraiser

Pitt Hopkins is a rare and severe neuro-developmental disorder caused by a mutation of the TCF4 gene on the 18th chromosome. It is characterized by profound developmental delays, problems with motor coordination (ataxia) and balance, breathing abnormalities, seizures and severe intellectual disability. Most individuals with Pitt Hopkins do not develop functional speech. Pitt Hopkins affects all races and both genders equally. Since the gene that causes Pitt Hopkins was only found in 2007, currently there are less than 350 children in the world diagnosed with this syndrome, however we believe there are many more. Every cent raised from the sale of these shirts will go directly to research- and this research is truly cutting edge. If you know anyone with ALS, Alzheimer's or Autism, then this is of interest because single gene disorders like Pitt Hopkins (where the cause has been identified) is one of science's best hopes for finding treatment for other genetic disorders. This research affects us all.

Campaigns

Pitt Hopkins Syndrome Awareness

Pitt Hopkins Syndrome Awareness Day T-Shirt Fundraiser

97
items sold
$570
raised
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Pitt Hopkins Syndrome Awareness Day Fundraiser

Pitt Hopkins Syndrome Awareness Day T-Shirt Fundraiser

405
items sold
$3,740
raised
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Ended
Pitt Hopkins Syndrome Awareness Day T-shirt Fundraiser

Pitt Hopkins Syndrome Awareness Day T-Shirt Fundraiser

78
items sold
$290
raised
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Ended
Pitt Hopkins Syndrome Awareness Day T-Shirt Fundraiser

Pitt Hopkins Syndrome Awareness Day T-Shirt Fundraiser

365
items sold
$2,750
raised
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Ended
Pitt Hopkins Syndrome Awareness Day T-Shirt Fundraiser

Family Support Fund for the Pitt Hopkins Clinic at MGHfC

32
items sold
$180
raised
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Ended
Pitt Hopkins Syndrome Awareness Day T-Shirt Fundraiser

Family Support Fund for the Pitt Hopkins Clinic at MGHfC

28
items sold
$60
raised
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Ended
Pitt Hopkins Syndrome Awareness Day T-Shirt Fundraiser

Family Support Fund for the Pitt Hopkins Clinic at MGHfC

67
items sold
$410
raised
Campaign
Ended
Pitt Hopkins Syndrome Awareness Day T-Shirt Fundraiser

Family Support Fund for the Pitt Hopkins Clinic at MGHfC

138
items sold
$1,250
raised
Campaign
Ended
Pitt Hopkins Syndrome Awareness Day T-Shirt Fundraiser

Family Support Fund for the Pitt Hopkins Clinic at MGHfC

99
items sold
$510
raised
Campaign
Ended
Pitt Hopkins Syndrome Awareness Day T-Shirt Fundraiser

Family Support Fund for the Pitt Hopkins Clinic at MGHfC

94
items sold
$870
raised
Campaign
Ended