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Rare Disease Day 5K for VWM 2018

Name: Rare Disease Day 5K for VWM 2018
Start: Mon, 22 Jan 2018 17:45:40 GMT
End: Mon, 05 Feb 2018 00:00:00 GMT
Location: Custom Ink

Rare Disease Day 5K for VWM 2018 Fundraiser - unisex shirt design - front

Rare Disease Day 5K for VWM 2018 Fundraiser - unisex shirt design - back

Rare Disease Day 5K for VWM 2018 shirt design - zoomed

Jerzees 50/50 T-shirt

Sizes YXS - XXXXL
View Sizing Guide

Buy a t-shirt for your 5K and support the VWMFF

All funds raised will go directly to VWM FAMILIES FOUNDATION INC

$440 raised

16 items sold of

50 goal

Thanks to our supporters!

$22

Jerzees 50/50 T-shirt, Unisex - White

Jerzees 50/50 T-shirt

Unisex - White

About this campaign

Join us on Rare Disease Day, February 28th, 2018, for a virtual 5K to support the VWM Families Foundation and wear your t-shirt to support your patient match!

Register for the event here

Vanishing White Matter disease (VWM) is a very rare neurological condition that destroys myelin, the brain’s white matter. In doing so, it permanently affects transmission of brain signals to the rest of the body. VWM primarily affects children and is untreatable, incurable and terminal.

Money raised by the VWM Families Foundation funds promising existing research projects to hopefully find a cure for VWM in addition to supporting families living with VWM.

Supporters

Deirdre Burke 1 item

I love and support Sam and the Buck family!

Jillian Moccia 1 item

For my friend Sam ❤️

Karen Maas 1 item

Annie Dettwiler 1 item

I walk to support this campaign because my great-niece Micaiah has VWM

kaylee franklin 2 items

My baby sister Arobella

Lisa Cimino 1 item + $100

In memory of dear Marisol O'Brien

Patricia & Thomas O'Brien 6 items + $300

Our Daughter , Marisol Liliana O'Brien died from VWM in December, 2008. She was a gift to all of us. We continue to help Dr. Orna Elroy Stein in all her efforts to find a cure for VWM.

Shellene Gilbert 3 items

In honor of Emma Hope Gilbert and all the children and adults living with VWM. You are true heroes! In memory of the angels we have lost.

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