Sickle Cell Anemia Awareness

Sickle Cell Anemia Awareness is a 501(c)3 non-profit organization that came into existence in 2014 after founder and CEO, NeDina Brock's son, Kareem M. Jones passed away. The mission is to bring about a greater awareness; awareness of one's own Sickle Cell status awareness of the deplorable healthcare and treatment Sickle Cell patients are receiving and lastly, awareness of the new developments in medicines & treatment centers being established.

Our intention is to reach out for support, sponsorship and partnerships with various organizations in the Hematology world, i.e. Foundation of Sickle Cell Research, (www.fscdr.org); Sickle Cell Natural Healing, (www.ssnaturalhealing.com); Global Blood Therapeutics (www.globalbloodtx.com). One of our goals is to educate through various resources along with the dissemination of information & literature about the disease and its progress. This disease is debilitating and patients die on average in their 40s. Health care for people with SCD is barely adequate and that is another one of our many challenges. Kareem could only go to clinic on Mondays because that was the only day designated for Sickle Cell patients at the San Francisco General hospital. Consequently, if he was sick any other day of the week he had to go to emergency, now I ask you "what kind of life is that". This disease deserves attention and more support with improved resources for patients to have a better quality of life.​ It has been NeDina's experience that in today's world of technology you can learn just about anything you want and SCAA intends to do just that. Learn as much as possible in order to educate properly and bring about this greater awareness. Sharing information and resources is for the betterment of all. By empowering others it improves one's own sense of self-awareness and confidence. ​We with our efforts and your support we can get this disease the recognition it so desperately needs. So that we too may have a stand alone Sickle Cell Anemia Care & Research Network in the San Francisco. Help us make this disease a disease of the past and not the future.