Ain't Nobody Got Spoons For That! POTS Syndrome Awareness

Why are we raising money?
My sister recently had to make use of a wheelchair, her house does not have a ramp or access for her to get in or out. I am trying to raise money so that a door can be placed that is wide enough for her to get though that includes a ramp. She is also in need of a service dog. They are really expensive to get trained. Her service dog will help her in her wheelchair, get her things she needs and help her in situations where she as fainted. It will help her be able to leave the house independently. The rest of the money raise will go to raising awareness and finding a cure for POTS through Dysautonomia International.

Her Story

I decided to make a booster for my sister because P.O.T.S. is not well known. Many doctors do not know how to treat it and many people do not understand that she is sick. P.O.T.S. is an invisible illness, this means that she does not look sick on the outside but her body is not functioning. This causes many people to assume she is lazy or just faking it when she is in need of help and medical care. This is a problem for many patients with P.O.T.S. Due to not looking sick many doctors diagnose them with anxiety so it takes them years to get a correct diagnosis. It took my sister 9 years to get her diagnosis. Some of the symptoms she deals with every day are dizziness, nausea, tachycardia, body pain, joint pain, migraines, blackouts when standing, fatigue, weakness, fainting, heat intolerance, blood pooling, blurry vision, shortness of breathe, chest pain and others. She needs help doing simple tasks that we take for granted like cooking, doing laundry and grocery shopping. She uses a wheelchair to get around when walking more than a half hour. If she stands or walks to long blood will pool in her legs, her heart rate will become tachycardic and she can faint. My sister likes to do art and paint nails. We like to go to the beach and Disney but this has become hard since she got really sick. I wanted to help her become more independent by raising money to get her a service dog and the medical supplies she needs to take care of herself. I like spending time with my sister and hope that her P.O.T.S. will get better so that we can do more fun things together while she is safe. Thank you for helping to raise awareness for P.O.T.S. so that my sister and others like her have a better chance to get better and there might some day be a cure.

Learn More
Dysautonomia International
The Spoon Theory
What is P.O.T.S.?
Symptoms of P.O.T.S.?