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Tarlov Cyst Support

Name: Tarlov Cyst Support
Start: Wed, 20 Aug 2014 01:42:41 GMT
End: Fri, 19 Sep 2014 00:00:00 GMT
Location: Custom Ink

Tarlov Cyst Support Fundraiser - unisex shirt design - front

Tarlov Cyst Support Fundraiser - unisex shirt design - back

Tarlov Cyst Support shirt design - zoomed

Gildan Ultra Cotton T-shirt

Sizes YXS - XXXXL
View Sizing Guide

Help Us Raise $1500.00 to Start Our Non-Profit Supporting Tarlov Cyst Disease Patients

All funds raised will go to Carmen Belardo, the organizer for Starting the 501 C3 for the Tarlov Cyst Support Foundation.

$110 raised

22 items sold of

50 goal

Thanks to our supporters!

$20

Gildan Ultra Cotton T-shirt, Unisex - Daisy

Gildan Ultra Cotton T-shirt

Unisex - Daisy

About this campaign

There are thousands of Tarlov Cyst Disease sufferers who need assistance and support! Help us kick off a non profit to help educate, support, and assist those suffering with this rare, painful disease!

Tarlov Cyst Disease is a little known, rare debilitating disease. Tarlov Cysts are cysts usually on the lower spine (sacrum area) that, if left untreated, can cause permanent nerve damage and chronic pain. Very few doctors will treat Tarlov Cysts, and there are thousands of people suffering all over the world. Because it is so rare, many people are left unable to receive treatment. Many insurance companies will not authorize the needed surgery because it is such a rare disease.

We want to help! Because Tarlov Cysts are so rare, there are very few Neurosurgeons who will treat Tarlov Cysts. Most patients who opt to have surgery must travel a long distance to get the treatment they need.We want to help patients with Tarlov Cysts by offering financial assistance to those who need help getting to and from their surgery site. We want to help bydonating wheelchairs andwalkers to those who can no longer walk without assistance. For those who are fortunate enough to receive surgical treatment, we want to be able to offerpost-surgical assistance. The recovery process can take 1-2 years. We want to be a support system for the patients and their families.

Please consider buying a t-shirt to help raise awareness about Tarlov Cyst Disease and help us start our non-profit so we can begin our journey!

Thank you!

www.tarlovcystsupport.org

Supporters

Beth Dehler 1 item

I have suffered from Tarlov Cyst Disease since 2009. I had surgery with Dr. F in march 2010; it was not successful. I am all about spreading the word about TCD.

Anonymous 1 item + $50

This disease has changed my life in every way...physically and emotionally. I want to be a part of and do anything I can to make Tarlov cysts an illness that people know about and doctors care about.

Mindy Wiegel 1 item

I share the pain of this disease.

Anonymous 1 item

I have tarlov

Susan Pall 1 item

I have been affected by this terrible disease. I had surgery with Dr F 3/2013.

Anonymous 1 item

For my years it turned my life upside down. Until I finally had surgery. I am slowly recovering. Others need to be educated about this disease.

Ursula Gilmore 1 item

I suffer w/TC at S2 & know how devasting TCs can be on both body & spirit I want others to become aware of this disease & its pervasive effects on the lives of TC sufferers. This is a fabulous way to get the word out-& help those suffering w/TCs

Anonymous 1 item

I've been unable to sit without pain for 2-1/2 years. Think of how much we sit: desk work, meals, meetings, travel, entertainment, church. Ten doctors unable to help. Persistent search finally revealed the cause. Hoping treatment gives my life back!

Anonymous 1 item

Have had pain in tailbone and foot for over a year. After months of tests they found a tarlov cyst. Pain specialist sent me to a neurosurgeon who said these cysts aren't painful. Sent me to PT.

Kevin R. Scharlau 2 items

I suffer from this rare, not well known disease as do many others. We need to get the word out about this life changing disease.

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