Team Weston's Williams Syndrome Awareness Shirts

We would love for you to help spread the word about Williams Syndrome (WS) especially during awareness month this May.

Like many others we had never heard of WS before the day we got Weston's diagnosis. We feared what this moment meant for all of us. Thru many tears and hospital visit we found our new NORMAL. We could not see life without him and his care teams. He continues to grow and strive each day, the improvements that have came in just the last few months amaze us. He may not be where he should for his age but man is he trying.

With out his large care team, I have no idea where we would be. There are so many it is hard to keep track; surgeons, pediatric anesthesiologists, pediatric cardiologist, Pediatrician, 2 ENTs, Audiology, ophthalmologist, geneticist, endocrinologist, lab technicians, urologist, PT, OT, IEP, Speech Therapist, countless nurses, Home Care, daycare and of course our AMAZING families. This list will continue to grow with one thing in common: Doing what is best for Weston and helping him succeed.

With that said we will continue to do everything possible for our little man even if that means, long drives to see his care team, many hours in hospitals, missed hours from work and family, Whatever it takes!! We could never live without that crooked smile, belly laughs and that wobble run. Just look at him!!