Our daughter Lucy was diagnosed with dilated cardiomyopathy in November 2012 when she was 8 months old. Although initially her prognosis was good, she declined at the beginning of 2013 and was listed for transplant after a three-week hospital stay. She died unexpectedly in her sleep last Mother's Day, two months after her release from the hospital.

Cardiomyopathy is difficult to detect and treat in children. Treatment and surgical options are poor. The mortality rate for pediatric cardiomyopathy is worse than that of pediatric cancer.

Find out more about Team Lucy go here.