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Emery's Army: Sturge-Weber Awareness
Gildan Ultra Cotton T-shirt
- Sizes YXS - XXXXL
- View Sizing Guide
About this campaign
Emery's rare disease calls for significant medical attention and developmental rehabilitation.Your purchases assists Emery in receiving the best care possible as she struggles through the challenges associated with her rare syndrome. Join Emery's Army.
Emery Grace was born on August 4, 2015. Her parents felt on top of the world as they welcomed the arrival of their new baby girl. After a few hours, they noticed there was something different about their sweetheart. She was born with a large Port Wine Stain, which is a birthmark, on the right side of her face. At the time, her parents did not know the challenges this would bring to Emery's life. Emery has always been a smiley and happy baby. Everything seemed ormal, and i appeare she would live a completely normal life.
On January 3, 2016, Emery was life flighted to Primary Children's Hospital after having multiple prolonged seizures. She was diagnosed with Sturge-Weber syndrome, a rare condition that is associated with brain atrophy, seizures, strokes, glaucoma, developmental delays and a long list of other lifelong challenges.
Emery's path will be different. There are no sure answers for her future right now, but her parents hope that by providing her with optimal care, answers will be found in the coming months and years. Emery is a happy, sweet irl, who is oved by any. She will have a wonderful life. Join her fight. Join Emery's Army.
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Supporters
#emerysarmy We love the Davis family!
We met Joy/ Sister Valentine when we went to Tennessee for my nieces baptism! Her and her companion truly were a blessing in our family! Watching this sweet family struggle but be so strong and faithful at the same time truly touches my heart!
Constantly amazed at the love and support that flows from this family. Keep fighting Emery!
Praying for baby Em and the Davis family.
We love the Davis family.
We are praying for sweet Emery!
We sure love you guys! Our thoughts and prayers are with you!
Joy rented a room in our BYU condo & we came to recognize what a wonderful individual she truly is! Her name perfectly reflects her beautiful nature. Emery is very blessed to have you both as parents!!
I met Emery's mom when she was serving a mission in my ward. She was always so positive and willing to help anyone. Our family is excited to be able to help Emery now. Having supportive family and friends makes anything possible.
Stay strong! We love you so much!