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CLOVES Syndrome - CLOVES Awareness Day
Organized by CLOVES Syndrome Community
Next Level Jersey T-shirt
- Sizes YXS - XXXXL
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More about the CLOVES Syndrome Community
CLOVES Syndrome stands for Congenital, Lipomatous, Overgrowth, Vascular Malformations, Epidermal Nevi and Spinal/Skeletal Anomalies and/or Scoliosis and was identified simultaneously and independently by Saap et al. and Alomari. CLOVES Syndrome has been diagnosed in about two hundred people worldwide.
CLOVES Syndrome is a non-hereditary disease that affects multiple systems and parts of the body. For many people, living with CLOVES Syndrome can lead to pain, challenges with mobility, overgrowth, neurological deficits and a host of other problems. There is no cure for CLOVES Syndrome and there are limited treatment options.
The vision of CLOVES Syndrome Community is an improved quality of life for people living with this rare disease. Learn more about our mission and goals on our website at www.clovessyndrome.org
We love someone with CLOVES Syndrome. If you are here, we bet you do too. Please help us to support CLOVES Syndrome Community and those we love with this ultra rare disease.
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Supporters
In support of my cousin's granddaughter who was born in April with CLOVES Syndrome.
My daughter has CLOVES
For my son Pedro Jr!!
To support sweet Riley and other great kids and families like her/hers.
Trenton Jones is one of my day care babies. He has CLOVES, yet loves life to the fullest. I will always support him and this organization.
My granddaughter was diagnosed with Cloves when she was 1 1/2. Now we have an idea what is happening and what to look for as she continues to grow with this syndrome. Thank you for helping get the information out to other doctors and general public
AUSTIN GODAR is our fabulous grandson who has CLOVES and we are so proud of him!
My daughter was born with cloves syndrome