Team Tetralogy of Follow Us

"Our son Sebastian, was diagnosed with a congenital heart defect (Tetralogy of Fallot ). He has been so fortunate to have the latest and greatest technology and medicine to intervine in his life so that he lives like a normal 3 year old. In Nov 2013, our nephew Luis-Armando, was diagnosed with a VACTERL and with a congenital heart defect of (Tetralogy of Fallot ). Baby Luis-Armando passed in January 2014 but in his time with us he showed us true strength, absolutely amazed us all and bewildered the doctors. This is our 3rd year of walking and CustomInk has always provides a service that helps us look like a team and proudly recognizes Luis’s battle and Sebastian’s current fight with our COOL team shirts. Sebastian will need more surgeries and a new valve as he grows older so fighting congenital heart defect for our family is personal. Here are just some of the facts: Nearly two million children and adults are living with a congenital heart defect (CHD) in the United States. Each year approximately 40,000 babies are born with a CHD, making it the country’s #1 birth defect. At least 10% of all congenital heart defects are first found in adulthood. Thanks to increases in survival rates, the number of adults living with a CHD rises by 5% a year and adults with CHDs are living longer, fuller lives than ever before. Your support will continue our progress. The Congenital Heart Walk is an exciting joint effort between the Adult Congenital Heart Association (ACHA) and the Children’s Heart Foundation (CHF)! This effort will raise funds to help both organizations continue their missions to address the needs of both the newly diagnosed and long-term survivors of congenital heart defects, in a truly inspirational day of sharing, caring and fun. " - http://www.congenitalheartwalk.org/ - Team TOF (Aug 20, 2014)